It's hard to deny that we live in a world where health issues seem to be increasingly common. From allergies that baffle doctors to chronic pain that never seems to go away, it's no secret that many individuals struggle to maintain good health. Respiratory issues, reproductive complications, and other conditions add to the mix, making it clear that we're all susceptible to some kind of malady.
Unfortunately, many modern doctors still believe that throwing pills at the problem or scheduling surgery is the best way to provide long-term relief. While certain serious conditions can warrant such extreme treatments, a large percentage of Americans are looking for something far less harmful and much more holistic. They're looking high and low for a reliable, well-studied solution that doesn't require time off work or sketchy pain medications.
At NJ Sports Spine & Wellness, one of the most effective and exciting treatments we've seen work for such patients is acupuncture in Avon, NJ - a modern take on an ancient treatment that has been used for thousands of years.
If you're new to holistic healing, acupuncture may seem intimidating. You might be wondering how needles pressed into your skin could possibly make you feel better. Wouldn't someone pushing a needle into your back be painful? As it turns out, acupuncture is far from painful and is quickly becoming one of the most sought-after treatments for chronic pain and for regulating issues relating to:
In fact, acupuncture has been studied and practiced for over 2,500 years and, more recently, has been researched and supported by many scientific studies. While acupuncture may not be a "miracle" treatment for every type of pain or condition, it has been shown to be effective in treating a wide range of issues, from depression and allergies to morning sickness and cramps.
Acupuncture is a therapy in traditional Chinese medicine (TCM) that aims to balance the body's energy, called qi, which flows through pathways called meridians. This balance is crucial for overall wellness, as disruptions to qi can lead to health concerns. According to TCM, inserting small stainless-steel needles into specific points called acupoints along the meridians can help rebalance the flow of qi and restore overall health.
These acupoints are believed to release certain chemicals when stimulated, which can trigger an immune response and promote physiological homeostasis. Recent research suggests that this therapy may help alleviate symptoms of various health ailments.
In fact, the National Institute of Health conducted a survey on complementary health approaches, revealing that acupuncture usage in the United States has increased by 50 percent between 2002 and 2012. As of 2012, 6.4 percent of American adults have reported using acupuncture as a form of treatment.
One of the most common questions from new patients interested in acupuncture typically revolves around whether it really works or whether it's all "new age" malarky. We get it - for most folks, the thought of inserting stainless-steel needles into one's back, arms, or neck sounds loony. However, with the ever-increasing popularity of acupuncture in New Jersey and other locations, numerous studies centering on acupuncture's effectiveness have taken place.
Extensive research has been conducted on the effectiveness of acupuncture for various conditions. A February 2022 analysis published in the BMJ, which evaluated over 2,000 scientific reviews of acupuncture therapies, revealed that acupuncture's efficacy is strongest for:
Additionally, according to the National Institutes of Health (NIH), acupuncture is most effective for pain relief in cases of chronic conditions such as osteoarthritis, lower back pain, and tension headaches. Additionally, a review of 11 clinical trials found that acupuncture may also alleviate symptoms associated with cancer treatment, as noted by the NIH.
When meeting with your acupuncturist for the first time, they will discuss your condition with you before conducting a physical examination to identify areas of your body that might respond to acupuncture. The needles used in acupuncture are incredibly thin, sterile, and disposable, with your acupuncturist inserting them at different depths ranging from a fraction of an inch to several inches.
Acupuncture needles are less painful than medical needles used for vaccines or blood draws. This is because acupuncture needles are thinner and solid, not hollow. During the treatment, you may experience some muscle sensations like dull aches or tingling.
Your practitioner will ask you to report any deep heaviness or numbness, which are positive signs that the treatment is working. Depending on the condition you're treating and the supplemental treatments you're undergoing, like physical therapy, acupuncture needles will remain in place for several minutes or up to 30 minutes.
Once your first acupuncture treatment is finished, it's normal to feel extra relaxed and calm. For that reason, some patients like to arrange for a ride home after their first or second session. With that said, you shouldn't experience much pain at all, and it's quite possible for you to return to work after acupuncture.
This is another common question that we get at New Jersey Sports Spine & Wellness. The simple answer is, "It depends." While we understand that that's not a satisfying answer for some, it's important to understand that every patient is different. Everyone has different bodies and, by proxy, different bodily conditions and issues that need to be addressed.
During your initial consultation at our office, your licensed acupuncturist will go over your needs and goals as it relates to acupuncture therapy. Once your therapist has a good sense of the scope of your needs, they can give you a loose idea of how many sessions you'll need.
Generally speaking, most patients have appointments once a week. Others may require more or less frequent sessions. It's important to note that the full benefits of acupuncture may not be immediately evident after the first or even the second session. It's common for normal patients to undergo up to five treatments to realize the full benefits of acupuncture.
There's no question that acupuncture is more popular than ever as a non-invasive, non-addictive way to reclaim balance and well-being. But what types of conditions can this traditional therapy help alleviate in the modern world? Advances in acupuncture techniques and applications have resulted in some very promising benefits.
Did you know that regular acupuncture treatments can help reduce the pain associated with osteoarthritis? In May 2017, a meta-analysis was published, which studied approximately 18,000 patients with chronic pain, such as low back, neck, and shoulder pain, knee OA, and headache or migraine. The analysis found that the benefits of acupuncture therapy in reducing pain lasted for more than 12 months.
That's wonderful news for athletes and other people who push their bodies daily to accomplish goals or bring home money for rent and bills. In fact, many medical experts consider acupuncture as a viable option for managing chronic pain in conjunction with traditional methods like physical therapy and chiropractic care. The idea behind this approach is that acupuncture may trigger the body's natural healing response to alleviate pain.
When a licensed acupuncturist in New Jersey inserts an acupuncture needle, it penetrates your fascia, a connective tissue that wraps around your organs and muscles. Like a slight tickle on your arm, your body realizes that something is happening and responds by delivering lymph fluid, blood, and other important nutrients to speed up healing in affected areas like your knees, back, neck, joints, and more.
If you're like other people who suffer from migraines, you know that once one of them hits, it can be next to impossible to function properly throughout the day. Fortunately, acupuncture in Avon, NJ may be a viable solution if you have to endure migraines often.
A study conducted in 2009 by the Center for Complementary Medicine at the University of Munich analyzed 11 studies involving 2,137 patients who received acupuncture treatment for chronic tension-type headaches. The researchers concluded that acupuncture could be an effective non-pharmacological solution for frequent headaches.
The study compared the effects of acupuncture sessions with sham acupuncture and no treatment at all. Both groups that received acupuncture treatment, whether needles were placed randomly or strategically, reported a reduction in headache symptoms, while the control group reported no change. The group that received real acupuncture treatment also reported a decrease in the number of headache days and intensity of pain in a follow-up survey.
For individuals who struggle with insomnia and other sleep disturbances, acupuncture is a promising therapy. Although sedatives are commonly prescribed for insomnia, long-term use can lead to negative side effects such as dependence and excessive drowsiness.
A study conducted on 72 participants and published in Sleep Medicine in 2017 found that individuals who received acupuncture three times a week for four weeks experienced significant improvements in sleep quality and anxiety compared to those who received sham acupuncture.
Similarly, a review of 30 randomized, controlled trials found that acupuncture was more effective in improving sleep quality and daytime functioning than sham acupuncture.
While many patients choose acupuncture as a way to avoid surgery altogether, those who need surgery also use it for improved recovery. Because, at the end of the day, recovering from surgery is no easy feat. Patients may experience various symptoms such as nausea, vomiting, pain around the incision, restlessness, sleep troubles, constipation, and sore throat.
According to Johns Hopkins Medicine, healthcare providers may use acupuncture as a way to alleviate some of these symptoms and help with healing. A study published in Integrative Cancer Therapies in January 2017 involving 172 participants found that patients who received acupuncture after surgery reported significant improvements in sleep, anxiety, pain, fatigue, nausea, and drowsiness.
Did you know that supplementing physical therapy with acupuncture and vice versa can have profoundly beneficial effects for patients in New Jersey and across the country? If you're like most, chances are you didn't.
The truth is that acupuncture and physical therapy have both been proven effective in reducing pain and inflammation. While many people view them as separate methods, combining the two modalities can produce a synergistic effect that enhances pain relief and delivers long-lasting benefits to patients.
Physical therapists work with patients of all ages and abilities, from children to elderly adults, to help them overcome physical limitations and improve their quality of life. At NJ Sports Spine & Wellness, our physical therapists help treat a wide range of conditions, from neck pain and spinal cord injuries to back pain and arthritis.
To effectively reduce pain and treat tissue injury, a combination of acupuncture and physical therapy can be very helpful. Acupuncture helps to reduce inflammation and release muscle tightness and trigger points, allowing the patient to better receive manual therapy or exercise-based physical therapy techniques. In doing so, acupuncture can actually create a window of time that allows your body to respond better to other treatments at New Jersey Sports Spine & Wellness, such as physical therapy and chiropractic care.
There are many benefits of combining physical therapy with acupuncture in Avon, NJ, including the following:
You may be wondering, "Are there any studies showing these benefits?" As it turns out, there are many. One such study, published on the NIH's website, was conducted on patients suffering from frozen shoulder.
Patients who received acupuncture experienced a significant reduction in pain, while those who underwent physical therapy saw an improvement in range of motion. However, the best outcome was observed in patients who received a combination of both treatments, with reduced pain, increased their range of motion, and improved quality of life. This study highlights the potential benefits of using acupuncture and physical therapy as complementary treatments for frozen shoulder.
It makes sense, then, that people from all walks of life are combining acupuncture with chiropractic treatments at New Jersey Sports Spine & Wellness, including:
At New Jersey Sports Spine & Wellness, our doctors, practitioners, occupational therapists, and physical therapist specialize in a range of therapies and treatments. Much like physical therapy and acupuncture, combining chiropractic care with acupuncture therapy gives patients a new way to reclaim their mobility, reduce chronic pain, and maintain a healthy quality of life.
Chiropractic care and acupuncture in Avon, NJ are natural healing practices that don't rely on drugs to improve the body's health. They focus on correcting imbalances in the body's structural and supportive systems, promoting natural healing, and ultimately leading to better health. These practices have a proven track record of helping patients improve their quality of life and overcome physical difficulties.
Integrating chiropractic and acupuncture as a dual-modality treatment offers the most efficient solution for removing blockages from the body, promoting balance, and accelerating healing. Rather than using these treatments sequentially, a combined approach allows for maximum benefits at one time.
Chiropractic targets subluxations in the nervous system through manual adjustments, facilitating the central nervous system to promote healing, while acupuncture removes blockages that may hinder the body's internal balance. Together, these treatments work synergistically to optimize energy flow and restore harmony in the body.
When our physical well-being becomes imbalanced, and our innate healing mechanisms are compromised, illnesses can manifest. The integration of acupuncture and chiropractic practices can effectively address a wide range of health conditions that they individually target, such as:
Curious if combining chiropractic care or physical therapy with acupuncture is right for your body? The best way to find out is to make an appointment at our sports rehab clinic in New Jersey. Once our team of medical professionals has a chance to evaluate your conditions, we can explore the best options to provide the most relief in the shortest amount of time possible.
New Jersey Sports Spine & Wellness consists of a team of athletic trainers, chiropractors, occupational therapists, physical therapists, and other professionals. We're very proud and passionate about caring for our patients, many of whom are suffering from debilitating conditions like back and neck pain, plantar fasciitis, sports-related injuries, and more. If you're trying to get on the road to pain relief and recovery, acupuncture may be the non-surgical solution you need to reclaim your life. Contact our office today to learn whether this exciting treatment is right for you.
There is good news for fans of Avon Pavilion, a decades-old seasonal restaurant on the Avon boardwalk whose longtime owners announced in September that they would not reopen in 2023.Liam and Carmen Moloney, owners of Bareli's By the Sea in Spring Lake, are the new lessees of the Ocean Avenue restaurant. The couple, who are currently rebranding ...
There is good news for fans of Avon Pavilion, a decades-old seasonal restaurant on the Avon boardwalk whose longtime owners announced in September that they would not reopen in 2023.
Liam and Carmen Moloney, owners of Bareli's By the Sea in Spring Lake, are the new lessees of the Ocean Avenue restaurant. The couple, who are currently rebranding the Spring Lake restaurant as Amelia's by the Sea, previously were part owners of Bareli's Restaurant & Bar in Secaucus and Del Monico in Cedar Grove, where the late James Gandolfini was also a co-owner. Liam also consulted on the July reopening of Brielle River House in Brielle.
More:These 25 Jersey Shore restaurants closed in 2022. And we lost some iconic spots
Michelle and Rob Fishman, who owned Avon Pavilion for more than 30 years, ran the restaurant from May through September. The Moloneys plan to do the same, possibly even extending the season through some winterization of the beachfront restaurant.
The building housing the restaurant is owned by the borough of Avon, and after the Fishmans announced they were leaving, its lease opened for public bidding. Seven other restaurateurs bid on the lease, said the Moloneys, both 39 and of Spring Lake, who were encouraged to take over the restaurant by customers at Bareli's by the Sea.
"We got in there and saw it and had the feel for the menu, and it’s such an amazing area," Liam said.
To start, they plan to keep the restaurant's name and look, and "the menu is still going to be breakfast, lunch and dinner," he said. "It's still going to be the great quality they had before, and we're trying to do a little more seafood."
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They plan to add sushi to the menu, as well as upgrade online ordering to make pickup easier for customers.
"We don’t want to go in and make a lot of changes," Carmen said. "We don’t want to change something that's been working for so long.
"We want to continue those traditions for the community, so we plan on having it be very similar and just making some modifications to be representative of our brand," she said.
More:New owners take over at Beach Tavern, Abbiocco restaurants in Monmouth Beach
The building also includes a retail space, which operates as a boutique selling beach items.
"There's value in being able to provide essentials People need it, you're right on the beach," Carmen said. "But we also want to extend into a little bit more of a gift shop as well."
Go: Avon Pavilion is at 600 Ocean Ave. Bareli's By the Sea is at 1505 Ocean Ave North in Spring Lake; 732-769-5700, barelisbythesea.com.
Sarah Griesemer joined the USA TODAY NETWORK New Jersey in 2003 and has been writing all things food since 2014. Send restaurant tips to sgriesemer@gannettnj.com.
Ten years ago next month, the Atlantic Ocean — churned into a frenzy by superstorm Sandy — rushed over the sand of the Avon beach and into Avon Pavilion, a restaurant on the borough's boardwalk.It wasn't the first time the restaurant was destroyed. Twenty years earlier, a most unexpected December nor'easter blew through.Sandy leveled the eatery, and owners Michelle and Rob Fishman and their staff — including Chef Ken Samuels, who had led the kitchen since 1991 — spent the following summer ...
Ten years ago next month, the Atlantic Ocean — churned into a frenzy by superstorm Sandy — rushed over the sand of the Avon beach and into Avon Pavilion, a restaurant on the borough's boardwalk.
It wasn't the first time the restaurant was destroyed. Twenty years earlier, a most unexpected December nor'easter blew through.
Sandy leveled the eatery, and owners Michelle and Rob Fishman and their staff — including Chef Ken Samuels, who had led the kitchen since 1991 — spent the following summer serving diners in trailers and tents along the beach while their restaurant was renovated.
"But we recovered," Michelle told The Asbury Park Press in 2015.
Avon Pavilion opened each year around Mother's Day and closed shortly after Labor Day, but this summer was its last. The Fishmans announced the restaurant's closure on Monday, Sept. 26.
"It's been a magical career, and it's really been all based on relationships," Rob said. "Relationships with vendors, with guests, with our whole staff — it’s really been wonderful."
The Fishmans shared the news on social media.
"It is with a very heavy heart to announce that the Avon Pavilion will be closing its doors after 33 incredible and wonderful years," they wrote. "It feels impossible to adequately express our gratitude for the lifelong friendships and memories created at the Avon Pavilion."
"Generations of employees and guests alike, united as a community through 33 years of triumphs and tribulations... celebrations, graduations, marriages, births and life events," they shared. "Together, we rebuilt the Avon Pavilion from the ground up after storms and floods, several times over. We persevered through a global pandemic."
Looking back:Ravaged by Sandy, Avon Pavilion reopens for summer
Another closure:The Serenity Cafe in Toms River to close Sept. 30
Rob first began selling concessions on the Shore's boardwalks nearly 50 years ago, and worked along the beach in Bradley Beach, Belmar, Spring Lake, Sea Girt and Deal.
"I started at age 19 while I was an undergrad at Rutgers, during my freshman year," he said. "I started at a place in Bradley Beach, The Jetty Joint. We sold hot dogs, hamburgers, french fries, knishes."
The summer of 2023 would have been Avon Pavilion's 34th season. The decision to close was emotional, Fishman said, in part because of the staff's bonds with customers.
"We treat everyone as a guest coming for a meal to the house," he added.
The restaurant was part of many family's vacation traditions, and hundreds of customers shared memories and photos on the restaurant's Facebook page.
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"I spent my childhood summers in Avon with my grandparents," wrote one user. "So many special memories, especially nightly walks to get ice cream. So many breakfasts with my mom. Thank you for creating such memorable summers at the Jersey Shore for so many people like me."
"I worked the take-out window on the boardwalk for four summers (in the early '90s)," shared another. "There is nothing I loved more than opening that window at 5 a.m. and not a soul was on the beach yet."
"You are such an integral part of what makes the Avon Boardwalk and beach such a classy and special place," reads another comment.
The Avon Pavilion building is owned by the borough of Avon, Fishman said, and a public bidding will be held to find a new lessee for the restaurant building and an attached boutique.
"It is our sincere hope that the new tenant who moves onto the magnificent Avon-by-the-Sea boardwalk cherishes the beautiful town and community as much as we have," the Fishmans said.
Sarah Griesemer joined the USA TODAY NETWORK New Jersey in 2003 and has been writing all things food since 2014. Send restaurant tips to sgriesemer@gannettnj.com, and for more Jersey Shore food news, subscribe to our weekly Jersey Shore Eats newsletter.
When my kids were young, a perfect summer family night would involve some kind of beach activity during the day and then a trip to the Avon Pavilion for dinner.And sometimes over the years, my husband and I enjoyed a leisurely stroll on the boardwalk there, just the two of us, and then capped off the evening with a great meal at the Avon Pavilion.We have so many wonderful memories there that I hate that I have to write this post.The Avon Pavilion is no more.It’s one of those things you had to experience to a...
When my kids were young, a perfect summer family night would involve some kind of beach activity during the day and then a trip to the Avon Pavilion for dinner.
And sometimes over the years, my husband and I enjoyed a leisurely stroll on the boardwalk there, just the two of us, and then capped off the evening with a great meal at the Avon Pavilion.
We have so many wonderful memories there that I hate that I have to write this post.
The Avon Pavilion is no more.
It’s one of those things you had to experience to appreciate but I’ll try to explain.
Everyone has a place like this that’s close to their hearts.
For many on the Jersey Shore, that place was the Avon Pavilion, a family-owned and run business for 33 years.
AvPav, as it is lovingly referred to by locals, had a great menu, and an amazing staff that felt like family (and treated YOU like family).
It was accessible from the boardwalk either as a sit-down restaurant or through walk-up windows that made it simple to get a quick bite.
Having known its owners, the Fishman family, (didn’t everyone?), I knew how they cared about the customer and about making the AvPav experience unique.
There are restaurants open up and down the boardwalks of New Jersey, but in Avon, this was THE place to go.
And no one would have ever chosen anything else anyway.
Picture that warm feeling of your best summer day with your family.
That’s what the Avon Pavilion felt like to those of us who have memories from happy times there.
It’s one of those, “If you know, you know” places.
But if you’re reading this and you’ve EVER dined at the Avon Pavilion I don’t have to explain it to you.
According to their Facebook page, The Borough of Avon will soon be holding public bidding for leasing the restaurant building and boutique.
The post expressed that it is the owners' "sincere hope" that the new tenant who moves onto the magnificent Avon-by-the-Sea boardwalk “cherishes the beautiful town and community as much as we have.”
“To our cherished guests, friends and AvPav family,” the post says, “it is with a very heavy heart to announce that the Avon Pavilion will be closing its doors after 33 incredible and wonderful years”.
Heavy heart indeed.
Opinions expressed in the post above are those of New Jersey 101.5 talk show host Judi Franco only.
You can now listen to Dennis & Judi — On Demand! Hear New Jersey’s favorite best friends anytime, anywhere and any day of the week. Download the Dennis & Judi show wherever you get podcasts, on our free app, or listen right now.
More than 30 years of summers filled with food, family and memories have officially come to an end.Avon Pavilion, an iconic restaurant among locals on the boardwalk in Avon-By-The-Sea, announced in a Facebook post this week that this past summer was its last.The closing was the result of medical issues among members of upper management, according to owner Robert Fishman.“Health always comes first,” he said. “People think that life is like a play, it’s four acts. You got the first act, the second a...
More than 30 years of summers filled with food, family and memories have officially come to an end.
Avon Pavilion, an iconic restaurant among locals on the boardwalk in Avon-By-The-Sea, announced in a Facebook post this week that this past summer was its last.
The closing was the result of medical issues among members of upper management, according to owner Robert Fishman.
“Health always comes first,” he said. “People think that life is like a play, it’s four acts. You got the first act, the second act — well unfortunately life is just one.”
Avon Pavilion, which opened each year in May and closed in September, is known for its casual fine dining fare with stunning views of the ocean as well as its boardwalk windows, where guests could walk up and order some quick eats.
Since its opening in 1990, the restaurant has faced many challenges, such as a nor’easter two years after it opened that decimated the boardwalk and destroyed the building, Hurricane Sandy in 2012, and most recently, the coronavirus pandemic.
“It’s all about hard work, passion and dedication,” Fishman said. “Even through these trials and tribulations, our team always showed up.”
Shortly after the announcement went live, floods of comments came through expressing sadness, reminiscing about the good times, but most of all love, offering support and gratitude for the team.
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“A huge part of the love that has been outpouring is that our restaurant has always been so family-oriented between not only the team but our guests too,” said owner Michelle Fishman, Robert’s wife. “We go to all their weddings and baptisms. They’ve been such a huge part of our lives.”
Although the owners are saddened by the loss, they will always carry this experience with them, they say.
Kenneth Samuels, the executive chef and a partner, says he’s going to take some time off and recharge.
“It’s like a double-edged sword. It’s bittersweet,” he said. “It’s going to be nice to be able to move on, reinvent and get a little bit of rest and relaxation.
“But I’m definitely going to miss seeing the team year after year and making all these memories.”
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Three-minute readAsbury Park PressAVON - As a history professor at Brookdale Community College, Jess Le Vine is comfortable speaking in front of a crowd. But the stakes never have been as high as they were in July, when he addressed members of the U.S. Food and Drug Administration about the rare disease plaguing two of his daughters.With Amber and ...
Asbury Park Press
AVON - As a history professor at Brookdale Community College, Jess Le Vine is comfortable speaking in front of a crowd. But the stakes never have been as high as they were in July, when he addressed members of the U.S. Food and Drug Administration about the rare disease plaguing two of his daughters.
With Amber and Haley Le Vine and their mom Karen in the audience, Jess explained the challenges of living with an enzyme deficiency known as SSADH, which causes intellectual delays, communication challenges, diminished motor skills and — most frustratingly — memory loss. Amber and Haley are in their early 30s but struggle to remember the simplest things, like what day of the week it is.
“I said, 'You have no idea what it means to have these kind of memory problems,’” Jess Le Vine said. “With an Alzheimer’s patient, you’re in this fog. But for them (Amber and Haley), they’re alert and it’s agonizingly frustrating for them not to be able to retrieve things.”
The Le Vines spent two days in Bethesda, Maryland, with other SSADH families and advocates to lay the groundwork for what they hope is eventual approval of a therapy drug that is in development at Boston Children’s Hospital. It’s been a long and draining crusade for the Avon residents, who have been at the forefront of research initiatives for several years.
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Because there are only 500 known cases of SSADH (succinic semialdehyde dehydrogenase deficiency) in the world, it’s hard to move the needle in terms of fundraising or mobilizing the necessary government support.
So imagine getting 10 minutes to state your case to the panel that may decide your daughters’ fate. That was the situation in Bethesda.
“The Le Vine family is a key player in this … and is of tremendous help in advancing our research work,” said Dr. Henry H.C. Lee, who is helping spearhead SSADH research and was in attendance in Bethesda. “Their powerful testimony is a great example of what challenges the patient families face daily, and the perseverance and love they have for their children. It was a powerful and moving message for me motivating my research work toward a tangible therapy for the patients.”
Amber and Haley, who were the second and third Americans to be diagnosed with SSADH, already have come a long way thanks to sheer perseverance. They learned to ride bicycles. They attended Brookdale. They’ve held jobs at local restaurants as greeters and food runners. Haley takes guitar lessons.
Still, the memory problems persist. Jess and Karen post lists all over their home — literally spelling out everything the sisters have to do, every day.
“You’re desperate trying to find some way to help them remember,” Jess said.
For nearly 10 years, Amber and Haley took part in a clinical study of an Alzheimer’s drug that showed promise.
“The NIH (National Institutes of Health) dragged their heels,” Jess Le Vine said. “We burned up a lot of time. In the end, the NIH said there wasn’t enough efficacy to go ahead and use it.”
Parents requested more information, like how the drug performed specifically for their children, because the symptoms of SSADH vary so widely. They never got answers. It was a heartbreaking dead end.
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That disappointment is fueling their proactive approach this time around.
“With gene-editing technology readily available and a clear objective in our research plan, we successfully created a mouse model which becomes a powerful research tool for us to understand how gene replacement therapy might work in the brain," Lee explained. "Within two years we have already obtained favorable data for gene therapy in this disorder, laying the foundation for future clinical therapy in patients.”
Of course, that hinges on fundraising and FDA approval. The Le Vines are persistent about the former — a key benefit event is taking place Sunday at The Columns in Avon — and their trip to Bethesda was aimed at the latter.
“They don’t really get it until they see the people face to face and you tell them the horror stories,” Jess Le Vine said. “Then they get it.”
The annual “Wave of Hope” benefit for the SSADH Association takes place from 1 to 6 p.m. Sunday at The Columns in Avon. Tickets are $35 and include live music, food, drinks and a gift auction. For more information visit www.waveofhope-ssadh.org/benefits.
Jerry Carino is community columnist for the Asbury Park Press, focusing on the Jersey Shore’s interesting people, inspiring stories and pressing issues. Contact him at jcarino@gannettnj.com.